The summer holiday is supposed to be a break for 10 days away from work and a time to relax, but holidays when you have a child with special needs are not quite the same as if you have a ‘normal’ child as you take your main responsibility with you! I spoke to a mum who had to take her parents and two sisters away with her to be able to cope with her son’s behaviour, now I am not sure ow much of a holiday that sounds. I am not aware of any ‘holiday clubs’ where an unpredictable epileptic child would be welcome.
We are very fortunate not to have any behaviour issues to speak of, apart from Joshua’s sleep patterns – one day sleeping until lunchtime and another , up all night long! He used to be badly behaved and inpatient when eating out , so much so that we swore that we would not take him to a cafe ever again, but that was when he was a little boy and now he enjoys eating so much, that he has settled down so long as we are not waiting an age to be served. I am not so sure if he has got better behaved or we are better at managing him and less embarrassed than we once were?
Even when Granny baby sat for us the other night and we went out to a local pub for a child-free drink, we ended up watching a downs syndrome boy who was sitting on his daddy’s knee, cuddling him, while he enjoyed the musician.Four out of five of my holiday books are about autism as I do not get as much time to read as I do at home.
Being the parent of a child with special needs is really not something that you ever get a holiday from, and quite honestly, nor would I want to. Joshua is an important part of our lives and where we go, he goes, and I would not have it any other way!