Joshua had two seizures yesterday,one unusual one that happened at school close to home time so as I was in the vicinity, I brought my dazed , staring boy home but as he arrived home, he perked up and enjoyed his tea and danced to his favourite U2 and Coldplay songs. But he had another seizure with his dad, after his bath, so when I got home from hospital visiting at 9pm, he was staring at the wall and looked as though we were in for a long and sleepless night.
He took another bath with me – Joshua loves his baths like his dad! – and then had cereal tucked up in bed. He was unusually vocal requesting ‘a story’ which he has not done for years and then agreed that he would settle for Mog, repeating my favourite fictional cat’s name. So it was lights out at 11 pm which is late for a school night but superior to awake all night. Given his earlier seizure activity, I snuggled up next to him and whispered to him then I needed to get up early as I had baking to do – I have offered to do a cake sale at school for staff as a fund-raiser for ‘Jeans for Genes’ day.
I was woken at 3.30 am with Joshua kneeling up next to me, pulling hard on my hair. He kept yanking my hair until I stirred, so he was a very effective alarm clock and we both came downstairs, where he had breakfast. It is now just after 5am and I have made a chocolate cake, flapjack and chocolate brownies so far. It could be a coincidence but he has NEVER woken me in that way, although 3.30 is not an unusual waking time for him.
I am not sure that I would trust Joshua to be my alarm clock for a really important appointment, but it does seem to be an odd coincidence.