I left work early yesterday to take a look around a second possible adult respite provision, which is just 25 minutes drive from home, so is very convenient. Each time I do this, it reinforces the fact that Joshua will have to leave his current provision too soon and start again elsewhere, which is always a daunting prospect. So I am looking around, trying to picture a grown-up Joshua in this setting:
My first impression was not great as on entering, there was a reception desk and then a long corridor with offices off it, so it felt more like a hospital than a homely environment. Then it opened up into a large lounge area, which felt like a hospital waiting room to me. There were two young men in there, lounging in armchairs, gazing at a television in the corner and I have to say, my heart sank. Then the lady showing me around, explained that they were awaiting their evening meal in 15 minutes, so I decided that perhaps I had caught them in a lull. The tour continued through double-doors into a large adjoining daycare facility and I was told about the activities that ‘service users’ enjoy there, although it was deserted when I was there.
Then she showed me one of 7 downstairs bedrooms, which were purpose built and very luxurious : the room was roomy, with tracking on the ceiling for a hoist and it had an ensuite bathroom, a television and a view out onto a large courtyard area outside. There were another 7 bedrooms upstairs and another quiet lounge. So then I had seen everything and she was able to answer all of my many questions, they are very comfortable with epilepsy and administering emergency medication. There was more flexibility over dates than at his current provision, in that you could save up your annual allocation of days and book a longer stay, potentially enabling us to go for a holiday longer than a weekend at some point in the future.
I felt uneasy about the ‘service users’ that I saw there however, as they were drifting around unsupervised. Joshua would need more direction than that and he would need close supervision for his own safety, he could easily have a seizure and fall down the stairs or burn himself in the kitchen. He would also need to be kept away from the reception and office areas for their protection, as he likes nothing better than to play on the telephone or computer keyboards and to scatter important papers and hide things – we have lost our TV remote control for over a month now! Perhaps the young people that I saw were more capable and independent than Joshua, but I cannot picture him in that large lounge, lolling in an armchair waiting patiently for his tea, he wreaks chaos at home in the run up to mealtimes, when I am distracted in the kitchen.
So my gut reaction is that it was not right for Joshua and I still have two more options to review, so I am keeping an open mind. I fear that we have all been spoilt by the excellent care that Joshua receives at his current provision and perhaps there is not as adult equivalent in our region, but I continue to seek it out.