Friday Night In

Joshua got home from school at 4 pm and he barged into the house, while I was talking to the driver and escort in the rain and wind tonight. We have a coming home routine : I remove his boots and splints and replace them with slipper socks so that he can get more comfortable at home. They have started removing his boots at school during the day too, but sadly this afternoon he stubbed his toe badly and split the top of two of his toes, so he must have given them quite a bashing. So it was my priority to get his boots off, to take a look to ensure that his boots were not rubbing on his sore toes. Next, he has his teatime medication , tonight in chocolate mousse.

Usually he goes into his den to watch the Show, but tonight he stayed in our snug which is super-cosy as we had had the stove lit all day. He lay on the settee while I prepared his evening meal. But before it was ready, he began to experience seizures on the settee – that might have been another reason that he wanted to stay under my gaze, perhaps he sensed that the seizures were on their way and did not want to be alone. One seizure followed another but in between, he kept trying to stand up, thinking that they were over but I encouraged him to stay sitting down. As the seizures were still coming after 5 minutes, I fetched the rescue medication from the kitchen cupboard and threatened Joshua with it, waving it in front of his blurred eyes, hoping to scare them off. Although they slowed down, they were still coming after seven minutes and so, the inevitable happened and I had to administer the medicine. It takes several minutes to take effect and they always seem to be the longest few minutes, as you start to doubt that the seizures will ever stop and have that sinking feeling that it is going to be necessary to call 999. But thankfully, as usually happens, the seizures gradually subsided and he relaxes into a deep anesthetic-induced sleep. So I will keep his tea warm for him until he is ready to eat later. He is likely to be washed out for his Friday night now, but hopefully he will reset overnight, so that it does not blight his whole weekend.

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