Time playing Tricks

Today is 2nd of June and I feel as though I missed May somehow, where did it go? Joshua’s half term school holiday has come and gone, yet I seem to have missed it. Mum has not been around for over a week now and yet it seems a lifetime ago that she died as the last ten days have been the worst of my life. Those 11 days with Joshua in special care, when we received his brain damage diagnosis, were tough days, but we had our new baby to see us through and I had my Mum by my side. The time we spent in hospital when Dad was dying were hard, but we had already lost him to dementia years earlier and once again, we had Mum by our sides.

She has been a constant in my life, through good and bad times : we always celebrated every family birthday together – I am so glad that she shared in Joshua’s 18th birthday celebrations in March – , she has stayed with us for the last few Christmases too and is always a perfect and helpful house -guest and we had a wonderful Mothers Day lunch out with my sister, mother in law, husband and Joshua and that was another happy day.

We have over a week to go before Mum’s funeral and over the past few days we have made huge progress to making her funeral into a celebration of her life well lived. My sister and I have organised things with the funeral director and we have sorted  out the venue for the refreshments after the church service. Yesterday I booked a violinist from a music group that Mum loved, to play as guests come into and leave the church and that will be really special. We began the process of choosing caterers but we have a very specific idea of what we are looking for, an event that Mum would enjoy and approve of so we need to get that choice right. My sister and I will meet the minister next week to discuss the service itself and we will start to pull the Order of Service together with some family photographs.

It has been helpful to have this focus on Mum’s funeral and to forget everything else that will need to be done eventually, but we are in no rush to deal with the house or Mum’s finances. I do worry that we will both fall off a cliff after the funeral, but I know on that day, we will be surrounded by love and support – as we have been since she died to be honest. I like to think that Mum’s spirit is still around supporting and comforting us, and giving us a gentle smack – like Joshua – when we begin to wallow too much in self pity. We can do this!

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We are Underway

So, we survived our first busy day since Mum died and we achieved a great deal. We had three matters to attend to, to start the official ball rolling in acknowledging Mum’s death : to collect the medical certificate of death from the hospital, to register Mum’s death and to take the necessary paperwork to the Funeral Directors. They were all big , serious tasks and once again, we consider ourselves fortunate that we were able to do them together, as all of those venues would have felt more daunting alone.

We arrived at the hospital 30 minutes before the Bereavement Centre opened and we were both shocked by the physical reaction that we had to turning into the approach road to the hospital car park. At the same point precisely, our stomachs flipped and we felt sick : just knowing that we had arrived, only this time it was not to visit Mum on the ward. That nauseous feeling continued into the car park and when walking along the main corridor. We went into a cafe, one we had never used before, for a cup of tea and a toasted teacake to calm our nerves and to fill the time, and that did the trick. Collecting the paperwork was a fairly painless process in the end and the lady there helpfully advised us on the next stage of our journey to the Registrar.

As it was pouring with rain, we took a taxi to the Registry where we had been warned, without an appointment, we would be asked to simply wait our turn. So we settled down, in full view of reception, so that we would not be forgotten,  and we watched families come and go, some in pain to register a death and others delighting in registering the new life in their families. But it was only 20 minutes or so before we were called through and a very human, helpful registrar took our details and printed off the death certificates that we requested.

We were feeling as though we were on a roll then, so we walked 5 minutes, in the rain, to a branch of Mum’s bank to inform them.  There was a lot of information to take in at the bank and it took some time to untangle Mum’s varied accounts. We were reminded of Mum’s kindness as we saw a list of her standing orders and direct debits to cherished charities such as Wateraid, Great Ormond Street Hospital and Cerebra. We thanked the helpful lady but I felt rather woozy on leaving the bank, so we stopped for some lunch and a sit down, to recover ourselves as we had achieved all of that by lunchtime. Then we drove back to Mum’s hometown and confident in our resilience, we went straight to the funeral directors where some difficult decisions had to be made. The funeral date still has to be finalised, but we now know  that at least it will not be next week, so we have some time to pace ourselves.

On leaving there, I just wanted to go back to mum’s house, I did not want to see anyone else but I needed a cup of tea and a nap in Mum’s lounge. We needed time to assimilate all that we had been told and to congratulate each other on how brave and efficient we had been. We rested, took some phone calls, wandered in the garden and then did some chores :  I did some ironing and my sister hoovered up and did some dusting. We both knew, without saying it out loud, that Mum’s high standards had to be maintained, even in times of crisis.

We both drove back to our family homes last night, which felt very welcome but strange at the same time, after an intense 24 hours together. Joshua gave me three big bear hugs when I arrived home and dogs never fail to give me an enthusiastic welcome. It seemed that I had been away from home for ages, as I checked if the puppies had doubled in size, but then I reminded myself that it had only been 24 hours. It was reassuring in a way to find things at home, the same, when everything had shifted, irreversibly at Mum’s house. We are well on the journey now…..

We are Family

Yesterday was an important day in our grief journey and I made big strides, as it is the first time since Mum died that I thought that we will actually be okay without her. She has trained us well and we are stronger than we look , so we will survive and go on to make her proud of us.

Everyone and everyday will be different, but yesterday, I needed to keep busy, so cooking Sunday lunch for seven of us,  was just what I needed. I baked a cake in the early hours of the morning , then from breakfast onwards, I was busy clearing the dining room – which has not been used as anything other than a store room since Christmas! – and preparing a feast of roast chicken with all the trimmings. My sister and her family arrived around 12.30 and we shared tight, lingering hugs with each other, showing how much we cared, without words.

Joshua was delighted, if a little overwhelmed, when our guests peeped into his Den at him and he leapt off his settee, giving me a bear hug then sharing them around. we have a sociable shared kitchen/snug space and so I was able to join in with the chat while finishing off the cooking. We toasted Mum as we sat down to eat together and I felt her presence there, enjoying the family party and being pleased that we were carrying on without her. As we ate, we shared stories about previous family occasions and exchanged memories together, it was not a sad meal, it was all about sharing. While I sat talking to my sister, my husband cleared the table and began washing up, which is the helpful role that Mum and Dad always took, whenever they stayed and ate here – there was always a rule when growing up, that whoever cooked, did not have to wash up – , so I was happy to let him do that.

Then most of us retired to the snug – two of the party had a siesta in the lounge – where we shared more stories, played with Joshua and gently began to explore some ideas for Mum’s funeral – nothing specific, but just exploring what we each liked and disliked in funerals and more importantly, what Mum would have liked. We drank endless cups of tea and didn’t move very much, but it was just what I needed. Our guests did not leave until after 7pm, with more bear hugs and cheeky waves from Joshua. Joshua played his part in the day perfectly, he seemed to sense that something different was happening but he took it all in his stride and he offered his Aunt many bear hugs of comfort. Luckily she only cried briefly, so he did not need to smack her, although he did give her a warning glance when she started to weep at one point.

I did not want to let them go, I wanted to keep what immediate family I have , close to me. But when they did leave, I realised that we will survive this shock: we are made with Mum’s strong character, and we will pull through and come out the other side. It will take some adjusting and there will be some dark days ahead, but we will survive them and emerge even stronger.

There’s one more angel in heaven, One more star in the sky

Yesterday morning, at about this time of day, my Mother died in hospital, after a 6 week stay there and after a longer illness. I do not need to tell you again how loved she was and how much she will be missed, as I wrote what she means to me on Mothers Day. And so instead, let me write about the kind of Granny that she was to Joshua and my niece:

Joshua;s face would always light up whenever he saw his Granny, he would run towards her for a hug, just like he does for me. Granny and Grandpa came over on the day he was born and she stayed with us for weeks, coming to Special Care and then helping out at home when we finally got here, she put her life on hold to take care of her daughter and new grandson. She shared in every one of his successes as he grew, no matter how small : I remember the first – and almost last time – that he had a wee in the toilet, she sent him a congratulations card as she knew how hard we had been working at toilet training. Mum wanted to know about what he was up to and was always supportive and caring of the ups and downs in his life : she came down to London on the train to visit him in Great Ormond Street after his brain surgery , she came to Christmas concerts at school and enjoyed looking around his respite provision to meet the staff that I had talked about. Given that Granny lived over two hours away, so she could not just pop round everyday, but she was fully involved in Joshua’s life as we spoke regularly on the telephone and we emailed a lot.

She gave that same caring support to her other grandchild, my niece: before she went to school, Mum and Dad were her childcare and so she spent a lot of time at their house, playing in their garden and even going on holiday with them. As she did well and school and then university, Granny was so proud of everything that she achieved and would boast about her success. She followed her career path closely, always available to offer advice if it was needed, but reluctant to interfere, and even in hospital last week, she was delighted to hear about her granddaughter’s success in her new role, and about the positive feedback that she had received from her manager. Even when Granny was not well, such as on my niece’s graduation day, Granny put her first and shared in the proud celebration, even though she was in pain at the time, but there is no way that she would have missed that occasion.

Granny showed both of her grandchildren selfless love, pride and support for the different paths that they trod in life. She has left them that legacy and they were fortunate to have had her in their life, until both were adults. I am not yet sure how we will cope without her in our lives, that is still too raw and uncertain, but I can reflect backwards, rather than looking towards our uncertain future. She would want us to be strong and brave in her absence, as she was throughout her life, and so we will try our very best to follow her lead and not to let her down .

Sisterhood

I have already written about my parents and what they mean to me, so now it is the turn of the other person who has known me all of my life : my big sister. My sister was 2.5 years old when I was born and apparently she was very possessive of her new baby sister and she was reluctant to let anyone else near me when I came home from hospital; her first memory is of a temper tantrum that she threw when somebody else dared to feed me a baby rusk. We did not really play together as children, as my sister only wanted to play schools,where she was teacher and I was the pupil, whereas I was much happier floating around the garden wearing fancy dress, but we were always companionable and talked a lot together. But as we have grown older, I would say that we have become much closer :

  • We are in contact everyday; we may not speak to each other daily, but  we send each other messages throughout the day. In times of family crisis, such as now when our Mum is in hospital, we are in more regular contact and we have been phoning each other too. We share and keep secrets with each other and we have always got plenty to say to each other, but are both good listeners and advisers when needed. Mum is fortunate enough to have three sisters and I have seen how they have rallied around her while she is unwell too, their family unit is similar to ours, except there are more of them.
  • We are fiercely protective of one another; so if somebody hurts my sister’s feelings or upsets, her, I am ready to protect her and fight her corner. I will always take her side, and I know she will be the same, and perhaps ask questions later. It is true that blood is really thicker than water, and this applies not only to my sister but our offspring too, so we are also protective Aunts too. My sister adores Joshua and I feel the same way about my niece, and we have both appeared at hospitals for them when we have been needed, no questions asked.
  • Although we are very different in personalities, my sister and I share  our parents and their principles in common.. So we would almost definitely approach problems in a different way – I am always more bolshy and spontaneous than my sister – but we will always be moving in the same direction. Of course there is room for both approaches, neither of us feel that we are inevitably right.  Physically, I am very similar to our Mum , while my sister resembles our Dad more, so we do not look like sisters.
  • We enjoy each other’s company, so we have often shared holidays and spa days  together and those are always fun times. We are going on a spa day in two weekends time and we will laugh and talk all day long I expect. In the year that my sister was 50 and my niece was 21, we 5 went to Florida for a fortnight together and had such a fun holiday. I was anxious before hand that we might wind each other up as my sister loves a plan , whereas on holiday, much of the joy is waking up each day, without a plan and being spontaneous about what we might do with the fresh day. In fact it was this fundemental difference in our approach to holidays, that had made me hesitate when she first suggested the idea. I only agreed on the basis that my sister and niece tried not to plan too much. But we had the best time, that we have enjoyed other holidays together since – long weekends in Center Parcs and a week in Majorca for my 50th. So it is a real bonus that we like as well as love each other. For the first time last Autumn, we went away with Mum and had a fabulous ” Girls” weekend in Harrogate and we had such fun, that we are hoping to make that an annual event as all three of us laughed a lot.

So thank you to my sister for everything that you do for me, we are lucky to have each other and you are a critical part of my support system. You not only support and protect me, your little sister, but you have embraced my husband and son too and welcomed them both into our family unit with your generous, open arms.

 

Home alone

For the first time that I can remember for years, I am home alone, with only the dogs for company. Joshua is still at respite until later today and my husband has set off on an overseas business trip, just for the week. So last night I was able to please myself and so I had a long, lazy bath as soon as my husband set off, then I had something to eat and settled down to watch ‘Call the Midwife’. Once I had enjoyed my weekly weep at the drama, I called to see how Joshua had been. I always call around 9pm so that I can speak to the afternoon staff who have worked with him and so that he will be tucked up in bed – in theory.

I could hear him awake in the background of my call saying ‘I like you!’ and as he was still up, they tried putting him on the phone to talk to me, but as ever he did not speak but held the receiver to his hear to listen . When they wrestled the telephone back from him, I heard how he had taken himself to bed around 8pm but had recently reappeared and he did not sound in the least bit tired to me.He had enjoyed a good day and he too had gone to the seaside, where we were the day before, and he had run on the beach then eaten sausage and chips. There were a few incidents of ankle-kicking, but a much better day in terms of behaviour, and they were combined with stories of a bear hug and gently patting his short keyworker on the head, with affection.

So I was able to report better news to my husband and then to enjoy an early night and sweet dreams. Hearing Joshua’s happy voice on the telephone, made me miss him more and I am really looking forward to him breaking my peace when he gets home from school, tonight. One night home alone is plenty , thank you very much.

Business as Usual

It does not seem long at all since we were putting the Christmas decorations up but now it is close to time to pack them all away again. I know that some people are eager to take them down and get the house  back to normal, but I am not one of those tidy people. I will miss the cards, tree and most of all, the pretty lights on our trees outside as  we  approach the house that never fail to make me smile. I am not convinced that Joshua has even been aware of the decorations , he did not react at all when I showed him our twinkling Christmas tree. I doubt that he is observant enough to appreciate the outside lights when he has come home in the dark.

For Joshua , I think the highlight of Christmas is seeing all of his extended family in a condensed period. This year he spent time with both Grannies, with all three of his Aunts and two of his Uncles and with all but one of his six cousins. He saw them all within three days of each other so it is an intense extended family experience for him and he certainly enjoyed it. When he was at home, he made the most of his ‘Den’, which has been really cosy these last few days with a real fire in there. It has meant that he had somewhere of his own to retreat to when he had had enough company. He would typically spend time with everyone , sitting at the dining table perhaps, but after eating the soup starter or once all of the crackers were pulled, he would take himself off to his den where he had the familarity of one of his DVDs on his own television. Once he was topped up, he would reappear and join the crowd, so that worked well and gave him some freedom about where he preferred to be.

He returns to school next Tuesday. Previous Christmases I have had to try to get him back into the habit of early nights ready for the school routine, but this year he has continued to be asleep between 9pm and 10pm , so that will not be a struggle. He has been enjoying some longer lie ins since new year, he did not wake until 9.30 yesterday, so the earlier starts might pose more of a problem. While he has enjoyed his time at home with us, I am sure that by next week he will enjoy seeing all his classmates and the staff again and will be ready to begin his Spring term and to have some more varied attention and activities. By next week then, with returning to school and all of the decorations packed away and the Christmas chocolate hardly dented, business as usual will resume, it started with my return to work yesterday, as though all of the Christmas preparations , then festivities, were all a distant dream.