Time to Review

Yesterday we had the first review meeting at Joshua’s new adult respite provision to discuss how his first few months have gone. Myself and my husband met with¬† the respite manager and Joshua’s key worker, and our social worker. We sat around the dining room table sharing how well he has settled in and planned the future, when he will progress to longer stays. He has started to eat there and is getting to know the staff and his bedtime routine. They have heard some of his language and they are planning activities that he might like to do in the future.

The only issue remaining has been showering as Joshua is not keen to get into the shower, though he is fine once he is in there. His downstairs bedroom has an en suite¬† wet room. Joshua prefers a bath, but the only bath is upstairs and is the en suite to a young lady’s room so it is not really accessible to him. This is not a new aversion, his children’s respite often struggled to shower him and if he objected enough, they would not insist. I would never offer him a shower at home, as I do not feel safe with a tussle to get him in there. They plan to try ‘desensitisation’, whereby the shower will be on whenever he goes into the wet room so that it becomes more familiar and hopefully less intimidating, and he will be encouraged just to put his hands under the spray of water at first, so we will see how that goes. He has two weekends booked in this month, so some progress will hopefully be made.

Joshua is now funded wholly by Health and so we have lost our current Adult Social Worker to be replaced by one who works for Health rather than Social Care. So this was our last meeting with her. She has certainly been an effective and caring social worker for our family, although Joshua never really acknowledged her when she visited him at school or at respite. But she spent a lot of time last summer getting to know us as a family and understanding both mine and my husband’s perspectives, as they are very different, and she took both of them into account when writing reports and seeking funding. She was proactive too, chasing me to look around respite alternatives and even yesterday, she was nagging me to review his daycare options in the near future too. This is the approach that we need, as otherwise time flies away from us just dealing with the day to day, she has always had her eye firmly fixed on the future, whereas I prefer the comfort and familiarity of the past and the present. So my husband shook her hand as we left, thanking her, and I gave her a hug. Nothing stays the same in life, time to move on but she has left us in a better state than she found us 18 months ago, and for that I am thankful.